In 2020, the Amgen-sponsored UPLIFT survey uncovered a strong disconnect between patients’ perceptions of their psoriasis and standard measures of disease severity. Despite millions of people in the U.S. and around the world experiencing psoriasis and psoriatic arthritis1, many patients still feel a disconnect with their physicians.2 To address these issues, Amgen has collaborated with the International Foundation of Psoriasis Associations (IFPA), most recently with the UPLIFT Innovation Program, an initiative focused on challenges faced by the psoriatic disease community and their healthcare providers. Building on earlier Amgen/IFPA work, patient organizations were invited to answer the question, “How can we boost collaboration between people living with psoriatic disease and their healthcare providers to establish and achieve shared treatment goals?” A global panel of health experts and patient advocates selected four projects to tackle this challenge.
US: Creating Resources to Improve Collaboration
The National Psoriasis Foundation (NPF) knows that improving shared decision-making can address the disconnect between patient and provider perceptions of psoriasis severity, treatment goals, and satisfaction by enhancing their ability to effectively communicate.
Taiwan: Healthcare Providers Learn the "Tango" of Shared Decisions
The Psoriasis Association of Taiwan worked with patients who still feel uncomfortable participating in the shared decision-making process with their doctors. In 2021, with the UPLIFT Innovation Program, the Psoriasis Association Taiwan created a patient decision aid that is friendly and easy to understand and now they can plan the next phase.
US: Building a System to Address Unmet Needs
Asociación Puertorriqueña de Ayuda al Paciente de Psoriasis (APAPP), based in Puerto Rico, aims to address the unmet needs of individuals living with psoriatic disease and healthcare providers through a comprehensive solution that focuses on enhancing collaboration and education.
Peru: Facilitating Close Conversations Without Fear
Asociación de Psoriasis y Artritis Psoriásica Perú believes it is important for patients to feel empowered to talk about their disease with their healthcare providers without fear.
Amgen is working with or supporting more than 70 organizations through cross-sector collaborations, public-private partnerships and advocacy relations programs. Visit Amgen Patient Advocacy and Strategic Alliances to learn more.